Dementia is not managed only in physicians’ offices, hospitals or memory care communities. Most dementia care happens in homes and neighborhoods—supported by family members who may have little preparation for the complex responsibilities they have assumed.

A Strategic Opportunity for Health Plans, Aging Service Providers, and Communities 

Family caregivers provide an estimated$600 billion in unpaid care each year in the United States, making them one of the nation’s largest—and most essential—care workforces. Yet despite their enormous contribution, healthcare organizations often don’t meaningfully engage family caregivers until they are already navigating a crisis.

As dementia rates rise nationwide, health plans, public health agencies, and community organizations have an opportunity to improve outcomes, reduce costs, and strengthen communities by investing in caregiver education, resource navigation, and support services.

Family caregivers are the backbone of dementia care in the United States. They coordinate appointments, manage medications, navigate healthcare systems, provide emotional support, and often serve as the primary advocate for a loved one living with dementia. Yet despite their critical role, millions of caregivers remain disconnected from the education, resources, and support systems that could help them succeed.